Independent Provider of Special Education Advice

(IPSEA) Independent Provider of Special Education Advice

We help children and young people with special educational needs and disabilities (SEND) get the education they are entitled to by law.

Contact

Contact: the charity for families with disabled children

Contact is a charity that supports families with disabled children, bringing families together and helping them take action for others.

Scope

Home | Disability charity Scope UK

We are Scope. We campaign to transform attitudes to disability, tackle injustice and inspire action. We create opportunities and provide information and support that empowers.

Mencap

www.mencap.org.uk

Information and advice to support people with a learning disability.

Hospital Passport

Health Guides: Hospital Passports, Summary Care Records And Flu Jabs | Mencap

Find out about hospital passports, the learning disability register, reasonable adjustments and how to ask for help

Internet Matters 

Supporting neurodivergent children who play games online. Guidance for parents and carers. Explore a range of resources for both parents and neurodivergent young people to help them build safe and healthy habits in online games.  

Roblox parents' guide for neurodivergent children | Internet Matters

Witherslack Group

Special Educational Needs Schools & SEND Support - Witherslack Group

We support parents and carers to navigate the journey of SEN with our resources and supportive team who are always on hand to help you and your family.

IHV

Top Tips for Parents - IHV

Use our helpful factsheets to find expert advice on key areas. Written by experts in the field, they cover topics such as feeding, health, behaviour and development, and are based on up-to-date research and the experience and knowledge of real-life health visitors working across the UK.

BBC Tiny happy people - Speech and language needs and disabilities

www.bbc.co.uk/tiny-happy-people/send

There are many common disabilities that can lead to speech and language difficulties. These resources are designed to help families of children with special educational needs or disabilities (SEND).

ERIC - Bowel and Bladder

ERIC 

Supporting children and families with bowel and bladder issues.

Children with additional needs - ERIC

Potty training children with additional needs - ERIC

Treating constipation in children with additional needs - ERIC

Help with toileting - ERIC

Toilet anxiety and toilet phobia in children - ERIC

Toileting support for autistic children - ERIC

Constipation and autism - ERIC

Interoception and toileting - ERIC

Advice about bladders, bowels and toileting for children with additional needs - ERIC

Support for families - ERIC

The following pages contain information and resources to help with potty training, toileting and children's bowel and bladder conditions.

Bladder and Bowel

Bladder & Bowel UK home page - Bladder & Bowel UK

Issues affecting the bladder and bowel are very common in children and young people.

Potty training - BBC Tiny happy people

Potty Training Children with Additional Needs - BBC Tiny Happy People

Almost all children can learn to be clean and dry. Children with an additional need or a disability may take a little longer and need more support, but the process is essentially the same. 

First Steps to Nutrition

First Steps Nutrition Trust

First Steps Nutrition Trust is an independent public health nutrition charity. We provide resources to support with eating well from pre-conception to five years.

Henry

Parents | HENRY

What happens in childhood has lifelong effects on our health and wellbeing. HENRY supports families in providing the best possible start in life for babies and children.

Access sports

Access Sport

We believe that no one should be excluded from the transformational benefits of community sport. The benefits we focus on are: Physical and mental health and well-being, Personal development (including life skills/ prospects), Sense of belonging, Community engagement. We train, equip and support community sports clubs, organisations and volunteers to provide inclusive programmes, unleashing their potential to transform the lives of underserved young people in their local communities.

Down Syndrome support services

Down Syndrome UK

Down Syndrome UK 

Down Syndrome UK (DSUK) is a national charity passionate about empowering parents and professionals to improve the lives of those with Down syndrome and their families in the UK.

Downs Syndrome Association

Home - Downs Syndrome Association

The Down’s Syndrome Association is the only charity in the UK providing support for all aspects of Down’s syndrome. Our aim is to enable people who have Down’s syndrome to live full and rewarding lives.

Down Syndrome Education (DSE)

Down Syndrome Education Online

We work to discover how and why development differs for children with Down syndrome, and how we can best help them to achieve their potential. We deliver evidence-based resources around the world that help families and professionals to provide effective teaching approaches and interventions.

Autism support services

National Autistic Society

National Autistic Society

Advice and guidance about autism and the challenges autistic people and their families face.

Ambitious about Autism

Ambitious about Autism | National charity for autistic children and young people

We are experts in autism education and run pioneering education services for autistic children and young people. Autistic young people are at the centre of everything we do. Every autistic young person has a right to work - help open new doors with us. Empowering parents with greater autism understanding and confidence.

Beyond Autism

Home - BeyondAutism

Our vision is to ensure autistic children and young adults access an education which empowers a life full of choice, independence and opportunity.

ADHD support services

ADHD UK

ADHD UK - Homepage - ADHD UK

ADHD UK is by people with ADHD for people with ADHD.

ADHD Foundation

Home - ADHD Foundation : ADHD Foundation

The ADHD Foundation is the UK’s leading neurodiversity charity, offering a strength-based, lifespan service for the 1 in 5 of us who live with ADHD, Autism, Dyslexia, DCD, Dyscalculia, OCD, Tourette’s Syndrome and more.

Neurodevelopmental conditions support services

Cerebra

Cerebra - Working with you and your amazing child

Our guides, factsheets and other resources offer comprehensive and current information on a wide variety of issues – physical, social and legal – that parents and carers of children with brain conditions may be facing. Services available include a Sleep Advice Service, the Cerebra Innovation Centre, our book and toy library and LEaP, our innovative problem-solving project that runs alongside our Legal Advice Service.

The Brain Charity

Home - Support for neurological conditions | The Brain Charity

We help people with all forms of neurological conditions to lead longer, healthier, happier lives.

PEEPS

Peeps-HIE 

Peeps is a national charity supporting parents, families & friends of those who have experienced an Hypoxic-Ischaemic Encephalopathy (HIE) event. 

Cerebral Palsy support services

Action 

Action Cerebral Palsy

Action Cerebral Palsy is working to ensure that every child and young person in the UK with cerebral palsy has access to the best possible intervention, care, education and support to meet their complex and changing needs.

Neuromuscular disorder support services

Spinal Muscular Atrophy UK

SMAUK

Supporting, Informing, Advocating. We’re committed to supporting everyone affected by Spinal muscular atrophy Neuromuscular disorder so that they have access to the best care, support and treatment and there will be no barriers preventing full inclusion in society.

Spina bifida and hydrocephalus

Find support - Shine

Shine provide advice about things like benefits, getting out and about, wellbeing, education and employment. 

Rare chromosome disorders and autosomal single gene disorders support services

Unique

Unique | Understanding Rare Chromosome and Gene Disorders  

We aim to provide specialist information relating to many hundreds of different rare chromosome disorders and autosomal single gene disorders, to inform parents, carers and the professionals working with them.

Royal Society for Blind Children

Welcome to the Royal Society for Blind Children

RSBC are here to support you and your family if you have a blind or partially sighted child aged 0-25. 

National Deaf Children’s Society

National Deaf Children's Society | Supporting deaf children

We’re here for you whenever you need us – if you’ve just found out your child has a hearing loss, you need support with making decisions as your child grows up. You can access all our information, services and support on our website.

British Deaf Association

British Deaf Association – The BDA stands for Deaf Equality, Access and Freedom of Choice.

The British Deaf Association (BDA) is the UK’s national Deaf-led membership organisation representing Deaf people who use British Sign Language (BSL) in the UK and Irish Sign Language (ISL) in Northern Ireland.

The Sleep charity

Home - The Sleep Charity

The Sleep Charity, incorporating The Sleep Council, provide advice and support to empower the nation to sleep better. We want everyone to share our vision that sleep is a vital component of health and wellbeing and that everyone living with sleep issues should have access to effective, consistent, evidence-based support.

Hunrosa

Comprehensive Sleep Resources, Tips, and Guides - Hunrosa

Comprehensive access expert sleep resources, tips, and guides. Improve your sleep health with our practical advice.

Sleep disorders centre, Guy’s and St Thomas’

Sleep disorders centre - Overview | Guy's and St Thomas' NHS Foundation Trust

The sleep disorders centre provides a service for a range of sleep disorders.

The Maypole project

Refer your family – The Maypole Project

Emotional support for the whole family from the moment a child or young person is diagnosed with a complex medical need. This includes conditions identified during pregnancy up to the age of 18 or for as long as needed. The Maypole Project supports the whole family.

Disability Rights UK

Disabled Students Helpline | Disability Rights UK

A helpline which offers information and advice via phone, email, and post to disabled students, apprentices, and trainees aged 16 and over, as well as their parents, carers, and supporting professionals.

Annual health checks – NHS

Learning disabilities - Annual health checks - NHS

Everyone over the age of 14 who is on their doctor's learning disability register has an annual health check.

NHS BMI calculator

Calculate your body mass index (BMI) - NHS - NHS

Check a child's BMI to find out if they're a healthy weight. It's important to use the right calculator for children and teenagers (aged between 2 and 17).

Medications for children

www.medicinesforchildren.org.uk

Medicines For Children - provide practical and reliable advice about giving medicine to your child.